It's been just over a month since Nolan's titanium plate has been put in, and he's doing great! We were surprised to see how quickly after surgery he was able to keep himself in a seated position and balance with his trunk strength (he still can't get to that position on his own, but he rarely falls over while sitting now). Before surgery he was only able to sit unassisted for maybe a few seconds so it's a huge step in the right direction! He now knows how to play with a ball, rolling it to someone and sometimes trying to use his foot to kick it. His physical therapists are so pleased with how much progress he's made with standing, kneeling, going from sitting position to standing, and using both arms/hands to hold things, which is still a work in progress, but it's progress! The most exciting thing we've seen recently is yesterday we were helping him be in standing position, and he purposefully lifted his leg and took a step forward... With his RIGHT leg! It was sooo good to see that he is capable of doing it when we were told 7 months ago he may never walk. We can't even believe how strong our boy is and how much he's come back from all of this so far.
We are currently very slowly weaning him off gabapentin, and we hope to be completely off it by end of June if all goes well. We will be so relieved if we can successfully get him off this last med! We have noticed a little irritability here and there, but we aren't sure if that's due to something else (teething, growing pains, sensitivity to something, etc.), or if it's from the gabapentin wean. He also still has some fluid in his head from his last surgery, but we are told it can take up to 3 months for that to completely resolve. Overall he is still so happy, sleeping well, eating well, and smiling and laughing. He really is pure joy, and we're so thankful that part of him wasn't taken away from us.
We did have the sentencing yesterday for Nolan's abuser. She was sentenced to serve 91 months in jail. It was a day full of every single emotion possible, even ones we weren't entirely expecting to feel. We are so grateful that we can now put that part of this nightmare behind us and we can move forward and focus on healing ourselves and our family. We are so incredibly grateful for the immense amount of support we received yesterday at the sentencing, and we want to give a special thank you to those who spoke, held our hands, hugged us, wiped away our tears, listened to us while we processed all that happened, and just showed up, whether it was in person, a phone call, message, prayers, etc. We were able to keep going and fight as hard as we did for Nolan because you all helped carry us. I say this all the time, but I just have no idea how I'm going to thank everyone enough. The amount of kindness shown to us just blows us away every single day. We love you all so, so much. Thank you
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